Written by his mama, Lindsey:
This is Micah.
He is 14 months old.
Micah was diagnosed at 4 months with Left Ventricular Non-Compaction Dilated Cardiomyopathy ( Read about this form of cardiomyopathy here ) after being rushed to the PICU for pneumonia. We live in Virginia, but were transferred to the Children's Hospital of Philadelphia within a week. Micah was put on the heart transplant list within a month of being in Philly. During the 4 months that he was in the hospital the doctors worked with the medications and the help of God and all the prayers to get his little body stabilized. Micah was able to come off all the iv's, moved to an inactive status on the heart transplant list and we are home. We have been home since July and his heart function is doing well with the medication he is on. Micah is now 22 pounds and is almost walking. He loves to babble, give kisses and play with his older sister. I know God grants miracles, because the day I took Micah to the hospital back in March I thought it was his last day. God is with my little superman everyday.
**UPDATE~ Today, February 6, 2012, Micah was deemed to be too stable to think about transplant, so he was taken off the list! YAY, Micah! **